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00:01 Good morning,

00:02 good afternoon and good evening to everyone who has joined us today for this event.

00:07 Today's event is

00:09 towards an inclusive world,

00:10 collecting better

00:12 data on disability.

00:14 My name is Charlotte McLean Nhlapo.

00:16 I'm the global disability advisor at the World Bank,

00:19 and I'm a brown woman with green eyes.

00:22 I have long brown hair.

00:23 I'm wearing large gold hoops,

00:25 and today I have an orange sweater on.

00:28 And I'm wearing black rimmed glass or reading glasses.

00:32 So before we begin today's discussion,

00:34 I want to point out some accessibility features that we have for this launch.

00:40 First of all,

00:41 we have international sign interpretation

00:44 that will be spotlighted throughout the dis the discussion.

00:48 Secondly,

00:50 we have closed captioning.

00:52 If you would like to access this feature,

00:54 please go to the bottom of your screen and select CC

00:58 the CC icon

01:00 and it and select show subtitles.

01:04 Alternatively,

01:05 we are placing the streaming link in the chat box right now and so if I could do that,

01:10 that would be great.

01:12 We would encourage you to use the chat box to introduce yourselves.

01:15 Let us know the name of your organization you represent,

01:19 and if you wish,

01:20 please do tell us where you're joining us from.

01:23 Additionally,

01:25 please post any questions you may have for any

01:28 of the speakers during the duration of this session,

01:31 and we will try to get to those in the course of our discussion today.

01:36 Finally,

01:37 we will be recording today's discussion.

01:40 And it will be shared along with the

01:43 PowerPoint um slides that presenters put forward,

01:47 and this will happen,

01:49 this will be shared in the next coming days.

01:51 So without further ado,

01:53 I would like to introduce

01:54 Ingo Wiedhofer.

01:56 Um,

01:56 Ingo is the practice manager in the social

01:59 sustainability and inclusion unit at the World Bank

02:02 that hosts the disability inclusive development team.

02:06 So it's wonderful to have Ingo with us.

02:08 I know Ingo has been a great proponent of

02:11 getting this course done and out and out there.

02:14 So without,

02:15 without further ado,

02:16 over to you Ingo.

02:18 Thank you very much,

02:19 uh,

02:20 Charlotte.

02:21 Um,

02:21 and

02:22 good morning,

02:23 good afternoon,

02:23 good evening,

02:24 uh,

02:24 to all of those of you who have joined us,

02:27 uh,

02:27 and thank you for joining us for this important event today.

02:30 Um,

02:31 as Charlotte mentioned,

02:32 my name is Ingo Widhofa.

02:34 Um,

02:34 I'm the practice manager of what we call our

02:37 global unit in the social sustainability and inclusion,

02:40 uh,

02:40 global practice at the World Bank.

02:43 Um,

02:43 I identify as a,

02:45 a,

02:45 a white male in my early 50s.

02:47 I have short brown hair and brown eyes,

02:50 and I'm wearing,

02:51 uh,

02:51 blue reading glasses today.

02:54 Uh,

02:54 I'm joining the meeting from my

02:56 home office,

02:57 which has been my

02:58 workstation for the last 2 years,

03:00 pretty much.

03:01 Um,

03:03 So,

03:03 including persons with disabilities and expanding equitable opportunities

03:08 are at the core of the World Bank's

03:10 work to foster sustainable and inclusive communities.

03:13 And this is closely aligned with the institution's mission

03:17 to end extreme poverty and promote shared prosperity.

03:21 Um,

03:21 operationalizing,

03:22 however,

03:22 this disability inclusive development and realizing the

03:26 rights of persons with disabilities requires quality,

03:30 policy relevant data on disability and

03:32 disability desegregated human development indicators.

03:36 To date,

03:37 unfortunately,

03:38 our development efforts are often constrained by the lack

03:41 of timely and relevant disability disaggregated data.

03:46 Um,

03:46 the lack of this data,

03:48 um,

03:48 uh,

03:49 the lack of adequate and current data on the prevalence,

03:52 needs,

03:52 and development outcomes of persons with

03:54 disabilities in low and middle-income countries

03:57 remains a significant challenge.

03:59 Even though disability data collection methods and

04:02 tools have evolved in recent years,

04:05 persons with disabilities often too often remain invisible

04:08 in many forms of development data collection.

04:11 There's thus a need for systematic and and,

04:13 and,

04:14 and,

04:14 and systematic improvement of the production,

04:17 global statistics on disability

04:19 based

04:20 on internationally comparable uh disability data sets.

04:25 One of the World Bank's 10 commitments on disability focuses on scaling up

04:29 disability data collection and use guided by global standards and best practices,

04:34 such as using the short set of questions on disability

04:37 developed by the Washington uh Washington Group on,

04:40 on Disability statistics.

04:43 Ensuring that disability desegregated data is then

04:47 also accessible and available to policymakers,

04:49 development practitioners,

04:50 academics,

04:51 civil society,

04:52 and other interested stakeholders is

04:54 crucial to advancing the evidence-based programming

04:58 for disability inclusion.

05:00 Disability desegregated data is also central to expanding the knowledge base

05:04 on access to services and the participation of persons with disabilities.

05:09 So I'm thrilled to be here today at this important event

05:13 that focuses on collecting better data on disability.

05:17 We have an excellent lineup of speakers today,

05:19 both from both inside and outside of the world.

05:23 who will speak about recent efforts to collect better data on persons

05:26 with disabilities and the lessons that they have learned along the way.

05:30 I'm also

05:30 delighted that today we,

05:32 we are able to launch a new self-paced World Bank e-course,

05:36 uh,

05:36 entitled Collecting Data on Disability Inclusion

05:39 that offers technical knowledge to World Bank staff and

05:42 development partners on disability disaggregated data to support more

05:47 robust activities for inclusive development.

05:51 The course includes an introduction to the Washington Group

05:54 question sets which you will hear more about today.

05:57 I hope you will all find the event informative and that the e-course will also be a

06:01 useful tool to help guide us all in collecting

06:04 better data on the stability as we make progress

06:07 towards a more inclusive world.

06:09 Charlotte,

06:10 with that,

06:10 uh,

06:11 back,

06:11 back over to you.

06:12 And thank you very much,

06:13 Ingo,

06:14 and really just again,

06:15 thank you because I know you've been really pushing us

06:18 to get this course out and so it's out there.

06:21 We're launching it today and we're really excited and

06:23 glad that you could be here with us to share

06:25 our excitement.

06:27 I'd like to now move to um Sophie Mitra,

06:30 Professor Mitra,

06:31 and Sophie is the director of the

06:33 Research Consortium on Disability at Fordham University,

06:37 and Sophie,

06:37 if you could please give us a global overview of

06:41 the status of Disability Data Initiative.

06:44 Over to you,

06:44 Sophie.

06:46 Thank you.

06:47 Uh,

06:47 can you hear me OK?

06:49 Yeah,

06:49 you sound perfect.

06:50 Go ahead.

06:51 OK,

06:52 great.

06:52 All right,

06:53 um,

06:54 hi everyone.

06:55 My name is Sophie Mitra.

06:56 I'm a professor of economics at,

06:58 uh,

06:58 Fordham University.

07:00 I'm a white,

07:01 middle-aged woman with gray hair,

07:04 and today I'm wearing a blue sweater.

07:07 Um,

07:08 so next slide.

07:09 Um,

07:10 so 184 countries have ratified the United Nations Convention on

07:15 the Rights of Persons with Disabilities since uh 19,

07:18 um,

07:19 since 2006.

07:21 And um

07:23 Given these uh advances at the policy level internationally,

07:27 but also with some countries adopting national policies and legislations,

07:33 uh,

07:33 of course we can wonder have the rights of persons with disabilities been realized.

07:39 they've been realized in some countries only.

07:42 And for countries where rights have been realized,

07:44 what is it that worked and how.

07:46 So to answer such questions,

07:48 we need we need data.

07:50 We need to collect a lot of data.

07:52 So what kind of data do we need?

07:55 We need data produced by various stakeholders

07:58 and in particular by organizations of persons with disabilities.

08:02 And such data will go a long way in

08:05 understanding the situation of persons with disabilities and to inform

08:09 policy and advocacy efforts.

08:11 At the same time,

08:13 these efforts will not provide nationally representative

08:17 information on individuals and households with disabilities,

08:20 and they may be difficult to compare across countries.

08:24 So that's where national statistics based on household

08:27 surveys and censuses can be very useful.

08:31 Uh,

08:31 to provide estimates for indicators that document

08:35 whether equal rights have been respected.

08:38 So statistics need to be based on concepts that are in line with human rights

08:43 and in human rights approach to disability.

08:46 They need to be desegregated by disability status

08:49 and also reflect the diversity of people with disabilities

08:53 and various aspects of their lives.

08:56 Next.

08:58 So that's where the disability data initiative comes in.

09:02 Uh,

09:03 it was,

09:04 it was launched last June

09:07 and um it,

09:09 its website has a report,

09:12 uh,

09:12 data tables,

09:13 as well as country briefs,

09:17 uh,

09:17 next.

09:19 Um,

09:20 so the,

09:20 the,

09:21 I'm going to read out uh

09:23 the website is disabilitydata.

09:27 AC.fodham,

09:30 F O R D H A N.EU.

09:36 And next,

09:39 Um,

09:40 so this,

09:40 this is the website for the visions table.

09:42 Next.

09:45 Um,

09:45 so I'm going to give you an overview of some of the main results.

09:49 So the first part of the result is about the availability of functional

09:55 difficulty data.

09:57 So functional difficulty data

10:02 consists in reviewing

10:05 functional difficulty questions in censuses and

10:09 national surveys around the world.

10:11 Uh,

10:12 why do we focus on functional disability,

10:15 functional,

10:16 um,

10:16 difficulty questions?

10:18 It's because,

10:19 uh,

10:20 these are the questions that have been tested internationally and that we know are

10:25 comparable internationally and follow the recommendations of the United Nations

10:30 for disability collection data in censuses.

10:34 So what do we find?

10:35 The report finds that disability questions of any

10:38 kind are absent for 1 in 4 countries.

10:42 And for 65% of household surveys and censuses,

10:47 so there's absolutely no information on disability in that case.

10:51 That means that in many countries surveys and censuses,

10:55 people with disabilities

10:57 continue to be invisible in national statistics.

11:01 At the same time,

11:02 and this is more encouraging,

11:04 we find that

11:05 uh the functional difficulty questions

11:09 have been increasingly adopted.

11:12 Um,

11:13 and in particular,

11:14 uh,

11:15 those that,

11:15 uh,

11:16 are,

11:17 um,

11:18 similar or identical to the Washington Group short set of questions.

11:23 Overall we find that fewer than half of countries and only 16% of

11:28 the household surveys and censuses under review

11:31 have internationally comparable functional difficulty questions,

11:36 so there are some

11:37 important

11:40 advances to be made in the future.

11:42 Next.

11:44 Now,

11:45 um,

11:45 the,

11:46 the report also has results,

11:48 uh,

11:48 for the,

11:48 with the analysis of survey and census data for 41 countries.

11:53 The 41 countries

11:55 were countries for which we had access to national

11:58 surveys and census data with functional difficulty questions.

12:02 What do we find?

12:03 Well,

12:04 first we find that functional difficulties are not rare

12:08 across the countries under review.

12:10 The median share of the adult population with functional difficulties

12:15 stands at 13%.

12:16 So that's very close to the 15% global estimate of the World Report on Disability

12:22 of 2011.

12:24 For households,

12:25 the median share of households with add-ons

12:27 with functional difficulties is at 28%,

12:29 so more than 1 in 4 households.

12:32 Has a functional difficulty

12:34 next.

12:36 So the report then goes on to

12:40 document a variety of inequalities

12:44 between individuals with and without functional difficulties

12:48 and between households with and without functional difficulties

12:52 in terms of outcomes related to education,

12:56 work,

12:57 health,

12:58 and standard of living.

13:00 The disability gap,

13:02 which is a disadvantage for persons with functional difficulties

13:06 compared to functional persons with no functional difficulties,

13:10 is consistently found across countries in terms of educational attainment,

13:15 literacy,

13:16 food insecurity,

13:18 exposure to shocks,

13:19 asset ownership,

13:21 and health expenditures.

13:23 We also do a multi-dimensional analysis

13:26 and that's what's represented on the bar chart in the slide.

13:32 And so at the individual level,

13:34 that means that we consider the

13:36 multiple deprivations experienced by an individual.

13:40 So for instance,

13:40 not working

13:42 and not having adequate housing would be

13:45 two deprivations experienced by an individual,

13:48 and we do experience,

13:49 we do find a consistent and large disability gap for multidimensional poverty.

13:55 So what's next?

13:56 The next report will be published in June 2020 and we'll add more.

14:01 Um,

14:02 we'll add more microdata analysis

14:05 and we'll review recent surveys and censuses,

14:09 uh,

14:09 since 2019.

14:12 So thank you so much for your attention and

14:14 I look forward to your comments or questions.

14:18 So thank you very much Sophie,

14:19 thank you for sticking to the time um and

14:22 I would really encourage colleagues who've joined us to,

14:25 to check out the DDI's website,

14:27 there's some really very good reports there.

14:30 And I think one thing,

14:31 one,

14:31 a lot of points stuck with me,

14:32 but one that I really,

14:34 that really stood out was that

14:35 disability

14:37 questions are absent from 1 in 4 countries censuses,

14:41 and,

14:41 and I think that's quite a stark

14:43 number,

14:44 and I think it just tells us about the deficit of disability data.

14:48 So now we would like to move to our next speaker,

14:53 and I'm going to turn to Pepe Montes,

14:56 and Pepe is a data scientist at the bank,

14:59 and Pepe has been working with the disability team as well as You know,

15:05 just continuing to drive

15:07 the importance of having disability disaggregated data,

15:11 and if you could tell us a bit more,

15:13 Pepe,

15:13 about the work that you're doing in collecting this disability inclusive data,

15:18 and you've got 7 minutes.

15:20 Yes,

15:21 hello.

15:21 My name is Jose Montes.

15:23 I go by Pepe.

15:24 I am a Peruvian citizen,

15:27 um,

15:28 browns screen,

15:29 brown eyes.

15:30 I'm wearing blue light glasses

15:33 and I'm wearing a green t-shirt.

15:36 So I'm going to tell you a little bit

15:39 about

15:40 the commitment of the bank to gather information

15:43 and what the challenges are

15:45 to actually gather the Washington Group's short set of questionnaires.

15:50 So in the next slide,

15:51 you're going to see the goal.

15:53 Which is the bank

15:55 has the goal to support 30 other countries.

15:58 To build capacity to reduce gap

16:01 in the ability of core data.

16:03 Including the segregation data by sex and disability.

16:08 So that's the commitment support the National

16:10 Statistics Office to gather desegregated data.

16:14 To,

16:14 uh,

16:15 carry information on sex and disability.

16:18 So in our next slide you're going to see.

16:20 What the questions,

16:21 what the group short set of questions are.

16:29 The

16:31 The problem was not

16:33 only the lack of information.

16:35 The lack of number of surveys or censors asking for this information,

16:40 but also in the way they were asked.

16:42 So

16:43 trying to improve the way

16:45 the information is gathered.

16:47 The Washington group

16:49 said

16:50 Several questions to address this issue.

16:53 And the minimum,

16:54 minimum

16:55 number of questions

16:56 to have

16:57 a proper profile

16:59 of people with disability is the short set.

17:02 That includes 6 questions.

17:05 That goes to

17:06 difficult seeing,

17:08 difficult hearing,

17:09 difficulty in walking,

17:11 difficulty remembering and concentrating,

17:13 difficulty in progressing yourself,

17:16 and

17:17 difficulty

17:18 for communicating.

17:20 So this is the minimum set of questions

17:23 to have a proper profile of people with disability

17:27 to know.

17:28 Whether uh

17:30 Who they are and what they need.

17:33 So,

17:34 um,

17:35 but

17:36 This is a very important first step on that information,

17:40 but the challenges are

17:43 Uh,

17:43 on how to implement this in the survey.

17:45 So in the next slide,

17:47 you're gonna see

17:48 that

17:49 in the next slide,

17:50 you're gonna see that the bank already is supported worldwide 31 countries

17:56 to gather this information.

17:59 So,

18:00 um,

18:00 it is a progress,

18:02 yes.

18:03 Um,

18:04 the challenge is this,

18:05 as you can see on the table is a period 2015,

18:07 2020.

18:10 First challenge,

18:11 uh,

18:12 not

18:13 every country has household surveys every year.

18:17 We also have problems trying to make countries to have periodically

18:22 household services so we can make sure not only

18:25 Um,

18:26 uh,

18:26 people with disability,

18:27 people without disability or anything at all.

18:29 So that's the first challenge,

18:30 but I'm going to talk a little bit

18:33 about that in the next few slides.

18:34 So.

18:36 The next slides.

18:38 Uh,

18:39 show the main difficulty of the bank.

18:41 To

18:43 increase the number of household service.

18:44 And the first

18:45 challenge is we are not

18:47 the only

18:48 players

18:49 advising the National Statistics Office.

18:52 And in most of the cases,

18:54 we are not financing any survey,

18:56 so we support and we advise,

18:58 but we don't have the power to actually impose

19:01 the inclusion of the Washington

19:03 group short set of questions.

19:05 Um,

19:06 we all know that there is,

19:07 uh,

19:08 we have a commitment and we advise.

19:10 Um,

19:11 but we,

19:11 it,

19:11 it's,

19:12 it's a lot of task.

19:13 It's a huge task to convincing the countries that they need to have,

19:17 to add this

19:19 question.

19:19 So that's the first challenge.

19:22 The second challenge

19:23 is that

19:25 not all the surveys are

19:28 are created to estimate or to measure individual characteristics.

19:32 So

19:33 it's not only that we have

19:36 a challenge trying to

19:38 not being the main player to try to convince them to add them,

19:42 but there are some surveys that

19:44 report very little.

19:46 Individual characteristics.

19:48 The education model is very limited.

19:50 Health model does not exist.

19:53 Labor model is very limited.

19:55 So

19:55 the,

19:56 the survey itself is not designed to measure,

19:59 um,

20:01 individual characteristics,

20:02 and that makes a challenge to actually.

20:05 Convince the NSO

20:07 to include

20:08 the

20:09 the Washington Washington Group short set of questions.

20:12 So 2 additional challenges are shown in the next slide.

20:16 And you can see that the challenge also is

20:21 Once we got them,

20:22 but once we get the jazz.

20:24 This is a new topic

20:26 for most people,

20:27 for most countries.

20:28 So training has to be provided.

20:31 And training to the enumerators,

20:33 to supervisors,

20:34 to the people who do the consistency checks.

20:37 And this is a very critical point,

20:40 um,

20:41 not only because it's a new topic that people have to learn,

20:43 but

20:44 The definition

20:46 of who has disability or not

20:48 in the past was very subjective.

20:50 Now with the Washington Group shorts set of questions,

20:54 it's a little bit suggestive,

20:56 but people are still

20:58 not always

20:59 comfortable revealing

21:01 this type of questions,

21:02 so

21:03 Uh,

21:03 training to enumerators must be,

21:05 is critical to actually have information of quality.

21:10 The final challenge

21:12 is that

21:14 Since in some countries,

21:15 people with disability.

21:17 are very low share of the total population.

21:21 A survey might not be the best instrument

21:24 to gather this information.

21:26 A census could do it,

21:28 but a survey might not be the case if,

21:30 if there is a very small population share of the population.

21:34 Uh,

21:35 then the sample size has to be very big.

21:38 To have a proper estimation of the share of people with disability or any

21:42 share of people

21:43 with small share.

21:45 In,

21:46 in the population and that means increase the,

21:49 the sample size and increase the overall price of salary.

21:53 So

21:54 those are the main challenge

21:56 to

21:57 increase the number of surveys with the Washington group short set of questions.

22:02 And that's it.

22:03 Thank you for your attention.

22:05 Thanks,

22:05 Peppa.

22:05 Thank you very much for setting out,

22:07 um,

22:08 some of the challenges.

22:09 I mean,

22:09 I think just to reiterate that the bank is not the only player.

22:13 Uh,

22:13 that not all countries are convinced that they want

22:17 to collect the data in the first place,

22:19 so some work needs to happen in that regard.

22:21 And then for just mentioning that there

22:23 are constraints around the instruments themselves,

22:25 the surveys themselves is important.

22:28 And of course the importance of ensuring

22:29 that we're training um enumerators is something that

22:33 certainly will be of interest going forward.

22:35 So thank you very much.

22:36 Now I want to move to our next colleague,

22:39 um,

22:40 our next speaker who's also a World Bank colleague.

22:42 Maria Elena Garcia Mora,

22:44 uh,

22:45 and Maria Elena is a senior social development specialist

22:49 and she recently led the launch of a report called titled

22:53 Inclusion of Persons with Disabilities in Latin America and Caribbean,

22:57 and this report has a huge amount of data.

23:00 And so

23:01 Maria Elena,

23:02 as you start to talk,

23:04 please just pay attention to

23:07 what does the data in fact tell us.

23:12 Thank you so much,

23:13 Charlotte.

23:13 And good morning,

23:15 good afternoon,

23:15 and good evening.

23:16 Um,

23:17 my name is Marielena Garcia Mora.

23:19 I'm a Latin woman

23:20 with very long wavy,

23:22 dark brown hair,

23:23 green eyes.

23:24 I am wearing um blue earrings

23:27 and a blue,

23:29 a blue sweater on top.

23:32 As Charlotte mentioned,

23:33 we recently launched this regional report on disability inclusion

23:36 in the region and would like to talk about

23:39 The data quality and availability in the region,

23:41 as well as give some ideas of the insights um of the main findings of the report.

23:46 And in the next slide,

23:47 you'll see how we'd like to start with the recognition that

23:50 the last decade has seen progress on data collection efforts.

23:55 We see that in the 1980s,

23:57 4 out of 32 censuses included disability desegregated data,

24:02 which went up to 26 out of 32

24:05 in 2010.

24:07 This goes in hand with progressive legal and institutional

24:10 recognition of the rights of persons with disabilities.

24:13 And particularly with the universal ratification of the United

24:17 Nations Convention on the Rights of Persons with Disabilities,

24:20 um,

24:21 by all of our Latin American and Caribbean countries with some recent changes,

24:26 um,

24:26 to the Caribbean,

24:27 particularly in the last couple of years.

24:30 Article 31 of the United Nations Convention specifically

24:33 establishes the obligations on statistics and data collection.

24:38 Yet we see still that many challenges remain.

24:41 So in the next slide we'll see that in addition to the number of countries.

24:46 that now collect disability segregated data.

24:49 We also see that impairment-based approaches have been progressively phased out.

24:54 And Professor Meacher already started discussing about the functional,

24:58 um,

24:59 functional way of collecting data,

25:02 and Pepe Montes started talking about the Washington Group's

25:05 short set of questions that we consider the gold standard

25:08 for disability data desegregated,

25:10 um,

25:11 collection.

25:12 As you saw,

25:12 the Washington Group set of questions explores

25:14 a person's difficulties in six core domains,

25:17 and it has allowed to rely on self-perception but also giving,

25:22 giving the information on severity of disability,

25:26 allowing as well a better understanding for policymaking.

25:30 So despite that,

25:31 we have seen,

25:32 and you can see uh in this map,

25:34 that there's a huge adaptation of the Washington Group

25:37 short set of questions in the censuses in,

25:39 in the 2010 round

25:41 in Latin America and the Caribbean,

25:44 we see that

25:45 in the 2000,

25:46 only 7 countries included that,

25:47 and it went to 21 in 2010.

25:50 Yet most of these countries only partially adopt

25:54 um the Washington Group short set of questions.

25:57 Many of them still include some screener questions that before the

26:01 short set asked about whether a person has disability or not.

26:04 So going back to some potential issues of order reporting

26:07 due to this um due to stigma associated to

26:11 certain questions or the way that it is asked.

26:13 We have some countries that do not ask all of the domains

26:16 that they change because of translation

26:19 and or that they change specifically aspects,

26:22 um,

26:22 particularly when it comes to asking questions in terms of concentration

26:26 or intellectual functioning in particular.

26:30 And the next

26:31 the next please.

26:32 The slow adoption of the Washington Group set

26:34 of questions is also noticeable in household surveys.

26:38 So we not only see that there's many household surveys that still do not include

26:43 A particular question for disability,

26:46 uh,

26:46 for persons with disabilities,

26:48 we still have 10 countries

26:50 that list disability as a reason for economic inactivity only,

26:54 or that they ask if a household member receives a disability-related cash

26:58 transfer or whether disability as a reason for children not attending school.

27:03 That limits a lot the analysis that this is the case in countries such as Argentina,

27:07 such as Brazil,

27:08 such as Uruguay.

27:10 For those countries that have indeed adopted,

27:13 um,

27:13 of the 18 recent household surveys,

27:16 only 4 countries fully adopt the Washington Group short set of questions,

27:20 and other 4 adopted,

27:22 um,

27:23 again,

27:23 partially.

27:24 The next one,

27:25 please.

27:26 But if we are to pinpoint

27:28 where do we have the biggest gap in

27:31 understanding the barriers of persons with disabilities,

27:34 it has to be that there's little to

27:35 no data on persons with intellectual psychosocial disabilities.

27:39 Um,

27:40 we still see that the questionnaires across 14 of household

27:44 surveys include over 20 different ways of asking for intellectual,

27:48 psychosocial disabilities,

27:50 with some notable stigmatizing vocabulary still being used,

27:53 like mental retardation,

27:55 like craziness,

27:55 mental

27:57 disorders.

27:58 So not only we see that there's many different ways of asking,

28:01 but again,

28:01 continuing with stigmatizing languages.

28:04 In addition,

28:05 numerous census and household surveys also leave behind those

28:08 that are in institutions and long-term rehabilitation centers,

28:11 hospitals,

28:12 prisons,

28:13 or hospice care centers.

28:14 We only have,

28:15 uh,

28:16 we have 12,

28:17 um,

28:17 censuses that did not reflect any collective living arrangements,

28:20 which again renders invisible an important segment of persons with disabilities.

28:26 National Statistics Office and Organizations of Persons with

28:29 Disabilities have led different efforts through specialized surveys.

28:33 We have 11 countries in our region that have specialized surveys for

28:38 um

28:39 understanding the barriers faced by persons with disabilities.

28:41 So that also has strengthened some of these data collection efforts.

28:45 But if we have to finish with 3 main messages um for this analysis.

28:50 The first one is that,

28:51 again,

28:51 disability data collection has

28:54 progressed immensely in our region,

28:56 but there's still many challenges related to comparability,

28:59 quality due to stigmatizing languages or lack of training or enumerators,

29:04 and leaving behind some important

29:05 subgroups.

29:06 The second one is that sectoral efforts to

29:09 strengthen disability data collection needs to be strengthened and

29:12 the bank is working with uh our education

29:15 colleagues in particularly on education management information systems.

29:18 But the last one and the most important one I think

29:20 is that existing data is sufficient to conduct robust analytics.

29:25 The report already showed how 15% of students are out of school.

29:30 that have disabilities.

29:31 We see also issues related to

29:34 poverty,

29:34 as Professor Mitra mentioned,

29:35 vulnerability.

29:37 We have data on,

29:38 on labor outcomes

29:40 and many other aspects that we can still already show despite

29:44 that data still needs to improve.

29:46 So I think that's the last part and with that,

29:48 we invite you to,

29:49 to see the report and perhaps go in further detail about the outcomes of,

29:53 of this data as well.

29:54 Thank you so much,

29:55 Robert.

29:56 Thank you Maria Elena,

29:57 and please do look at the report,

29:59 it's been put into the chat and feel free to

30:02 ask questions um and and post them in the chat.

30:06 So Maria Elena,

30:06 thank you very much and um you know,

30:09 very interestingly you mentioned that the Washington

30:11 short set in some countries is partially used

30:15 and that often the questions are not adopted in

30:18 totality and I mean that obviously raises some,

30:20 some challenges

30:22 and that they continue to be issues around translation.

30:26 Um,

30:26 and then I think thank you very much for flagging the point that

30:29 there is little or no data on

30:32 persons with intellectual or psychosocial disabilities,

30:34 and this is,

30:35 this is a challenge that,

30:36 um,

30:37 I think this sector needs to think about a bit more.

30:40 Um,

30:40 and then of course

30:41 also flagging

30:43 the really important point that often gets overlooked and that is that.

30:47 Persons with disabilities that are in

30:49 institutions or in long-term care facilities

30:52 often are not being included in in these surveys and um and and that obviously

30:58 means you're not,

30:58 you know,

30:59 you're not counting or including large groups of the population.

31:02 So thank you very much for that.

31:04 Now we'd like to turn to site savers.

31:07 Um,

31:07 SiteSavers probably needs no introduction to this group,

31:10 but,

31:10 um,

31:11 Savers is an organization

31:14 whose work focuses on the inclusion of persons with disabilities,

31:17 and we're super fortunate to have Doctor Elsie

31:19 Makachia.

31:22 Um,

31:22 and Elsie is a project manager at Sitesavers,

31:26 and so.

31:27 Elsie,

31:28 it would be great if you could talk to us

31:30 about some of the lessons learned on collecting disability.

31:34 Inclusive data at Sitesavers.

31:36 What have you done?

31:37 What's your approach been?

31:39 and over to you.

31:41 Thank you,

31:41 Charlotte.

31:42 Hi everybody.

31:43 My name is Elsie Makachia.

31:45 I'm the inclusive data project manager at Sitesavers.

31:48 I'm really pleased to be speaking to you this afternoon.

31:51 I'm a black woman,

31:52 I'm wearing red,

31:54 uh,

31:54 reading glasses

31:55 and a green top,

31:57 and I've got long,

31:58 um,

31:59 brown hair.

32:00 So,

32:01 um,

32:02 get to the next slide,

32:03 please.

32:04 Promoting equality and inclusion of people with disabilities

32:08 has been at the heart of SiteSaver's mission and is core to our advocacy

32:12 and work in

32:13 disability inclusion,

32:15 health,

32:17 education,

32:17 political participation in other areas of our work.

32:20 At So Savers,

32:21 we started looking at disability disaggregated data in 2014.

32:26 And since then,

32:27 our work on disability aggregation

32:30 using the Washington Group short set of questions

32:33 has progressed significantly.

32:35 From undertaking pilots

32:37 and research studies to us now collecting

32:40 disability data as part of routine monitoring

32:43 and inclusive eye health.

32:45 Projects

32:46 and looking at how we can strengthen the use of the Washington Group questions

32:50 across our programs,

32:52 sharing our challenges

32:53 and learnings with others in the development sector.

32:57 Increasingly,

32:58 we're taking a more holistic approach.

33:01 At how disability intersects with other characteristics such as wealth,

33:06 location,

33:07 education level,

33:08 race,

33:09 and others.

33:10 Sitesavers is a co-founding champion of the inclusive Data Charter,

33:15 a multi-stakeholder initiative

33:17 bringing governments and organizations together to collectively advocate for

33:22 and take action

33:23 on inclusive data,

33:25 and our work on disability data

33:27 is key to our inclusive data charter commitments.

33:30 Next slide please.

33:34 As you can see on the table,

33:35 um,

33:36 to the left of the screen,

33:38 um,

33:39 this gives some examples of some of the work that Safesavers has taken

33:42 on disability-inclusive data.

33:45 Um,

33:47 I've given an example of one particular project which is the Right to Health

33:51 project in Pakistan,

33:52 which,

33:53 in which we work with partners such as the LRBT

33:56 Eye Hospital

33:57 to restore and protect people's sights

33:59 and ensure that health services are accessible

34:02 for people with disabilities and other marginalized groups.

34:05 This was a co-funded project by

34:08 UK AIDS through the Aid Match Initiative and ran from 2018 to 2021.

34:12 And we use the Washington Group short set of questions

34:16 as baseline,

34:17 midline,

34:17 and endline of the project.

34:19 And our disability questioning was administered through a

34:23 mobile application,

34:24 data capture application called Comcare.

34:28 We actually found that services used by uh people

34:32 with disabilities was much higher than what we'd anticipated

34:35 and was actually consistently higher at primary care level.

34:39 And we use,

34:40 we use the project findings to lobby governments,

34:43 the government in Pakistan,

34:45 on the inclusion

34:46 of disability

34:49 questions within surveys

34:50 and censuses

34:51 and the integration of disability data and SDG reporting,

34:55 and I'm pleased to report

34:57 that the government of Pakistan is actually going to be including

35:00 the Washington Group questions this year in their census.

35:04 Next slide,

35:05 please.

35:07 Overall,

35:08 what we've observed globally

35:10 and organizationally over the last few years

35:12 is a greater awareness of the importance of disability data.

35:17 With the Washington group questions being increasingly used more widely,

35:21 but there's still a lot more work to be done to strengthen the collection

35:25 and use of disability data.

35:27 So the key learnings from our work as sightsavers

35:30 are at a more practical level.

35:32 Um,

35:33 most importantly,

35:35 is investing in training of staff and partners,

35:37 and that's in

35:39 integrating disability-inclusive data collection within job descriptions

35:43 alongside ensuring staff and partners

35:46 have the skills

35:47 to ensure data collection is done

35:49 consistently and accurately.

35:51 Moving on to the contextual awareness and adaptation,

35:55 you need to be cognizant of the local context

35:58 to ensure that data collection tools

36:00 such as the Washington questions are translated

36:03 well.

36:04 By considering the cultural and social norms at play,

36:08 and adapting the data collection approaches as needed.

36:12 You also need to engage your,

36:13 your respondents,

36:15 that's the,

36:16 the,

36:16 the people with disabilities across the data cycle.

36:19 So you need to ensure that you get informed consent

36:22 for their participation within the data collection process

36:25 and ensure that their feedback mechanisms in place so that they fully understand

36:30 what's expected of them,

36:32 how the data will be collected,

36:33 used and stored,

36:35 and what's going to happen

36:36 to the feedback

36:38 that comes as a result of the findings of the project or program.

36:42 At a broader level,

36:43 we've also learned the importance

36:45 of

36:46 the national capacity building and system strengthening.

36:49 So,

36:50 um,

36:50 with that,

36:51 more governments are including disability data

36:54 collection within the census and surveys,

36:56 but we need to invest

36:58 in resources to continue making progress.

37:00 In our experience,

37:02 working with governments

37:04 and partners.

37:06 It's important in understanding what's needed alongside

37:09 advocating for investments

37:11 in the collecting,

37:13 in the,

37:14 in the collection

37:15 of disability-inclusive data.

37:17 So capacity building to help governments to analyze and use the data

37:22 and being able to show them why data is critical

37:25 to their wider system strengthening

37:27 and driving more inclusive,

37:29 equitable policies and outcomes for all.

37:33 Then partnerships and collaborations are

37:34 really important between different actors,

37:37 including working with organizations of people

37:40 with of persons with disabilities,

37:42 civil society,

37:43 and others

37:44 is really critical

37:46 to addressing the barriers

37:47 and gaps on disability inclusive data.

37:50 For example,

37:51 we're seeing more recognition

37:54 of the importance and relevance of non-official data.

37:58 Sources collected from CFOs

38:01 and

38:02 communities to complement official data collection.

38:06 For a more inclusive COVID-19 response

38:09 and recovery.

38:10 So multi-stakeholder collaboration

38:12 is key to collecting and using

38:14 better quality

38:16 disability-inclusive data

38:17 and can also help to facilitate knowledge exchange on best practice and learning

38:22 so we can collectively

38:24 drive more momentum and action.

38:27 Thank you very much for listening.

38:28 And over to you Charlotte.

38:30 Thank you very much,

38:31 Elsie for a very rich,

38:33 rich presentation and thank you for sharing the Pakistan

38:36 example and how your work has then gone on to influence the government's decision

38:41 to include the Washington Group questions in in the census.

38:44 So it really shows that the data can make a

38:47 difference and our work is important in that regard.

38:50 And then also for noting the,

38:52 the importance of being aware of the cultural context

38:55 and and that links very much to the point that

38:57 Maria Elena made around translation.

39:00 So thank you.

39:01 Now,

39:01 I'm really excited and I almost feel like we need to have a drum roll here

39:06 to finally launch our e-course,

39:09 collecting data on disability inclusion.

39:12 And to help us launch this,

39:13 we're really fortunate to have

39:15 Dan Mont,

39:16 who's the CEO and co-founder of the Center for Inclusive Policy.

39:21 As well as Mitch Low,

39:22 who's a disability data

39:24 consultant.

39:25 Dan and Mitch,

39:26 over to you to give us a quick overview of this really exciting e-course.

39:32 Thanks so much,

39:33 Charlotte.

39:34 Um,

39:35 I'm Mitch Loeb.

39:36 Um,

39:37 I identify as a

39:39 moderately handsome

39:41 69 year old white male

39:43 with gray hair,

39:44 blue eyes,

39:44 and black glasses,

39:46 and I'm wearing a black sweater today.

39:48 Um,

39:49 Charlotte,

39:49 you took away the drum roll from me.

39:51 I should have had it,

39:52 uh,

39:52 on tape,

39:53 but,

39:53 uh,

39:54 that's exactly what we needed.

39:55 Um,

39:56 Dan and I worked,

39:57 uh,

39:58 worked hard with,

39:59 uh,

40:00 World Bank staff

40:01 to put this together,

40:02 this course together,

40:03 and we're really happy to,

40:05 uh,

40:05 present an outline of it for you today.

40:08 Um,

40:08 I'd like to thank,

40:10 before I begin,

40:10 the previous speakers

40:12 because I think they really laid the groundwork

40:15 for what we know

40:17 about

40:17 this.

40:18 data collections.

40:19 What's been carried out in,

40:21 in recent years,

40:23 some of the pitfalls of the past,

40:25 and some of the challenges that are still being faced

40:29 by

40:30 organizations of people with disabilities,

40:32 by government statistical offices in collecting

40:36 valid and reliable

40:38 disability data.

40:40 Can we go to the next slide,

40:41 please?

40:44 So,

40:45 um,

40:45 I'm gonna

40:46 just give a brief introduction to a few items in the course and then Dan will pick up

40:50 from where I leave off.

40:51 There are objectives,

40:53 clear objectives for this course.

40:54 We want to provide

40:56 technical knowledge on disability desegregated data

41:00 to support inclusive.

41:02 Development.

41:03 Within the World Bank,

41:04 there are a number of programs that will rely on collecting

41:07 quality

41:08 disability disaggregated data

41:10 and we want to provide

41:12 the technical knowledge to do that.

41:14 We want to impart information

41:16 and tools on data collection,

41:18 analysis,

41:19 and use of disability data.

41:22 So not just

41:23 the tools themselves,

41:24 but how to analyze data and how to use those data

41:28 in a,

41:28 uh,

41:29 in a way that can promote

41:31 inclusion

41:33 um through projects in the World Bank.

41:35 And we want to provide an introduction

41:38 to the questions developed by the Washington Group on Disability

41:41 statistics.

41:42 You've heard a little bit about them

41:44 already.

41:44 I'm going to give you a little bit more information

41:47 about them now

41:48 on the next slide.

41:51 So what we want to present

41:54 is uh an introduction to those questions

41:57 that were developed by the Washington Group

41:59 and designed primarily for population-based

42:02 surveys and censuses.

42:05 These question sets include

42:07 one that you've heard of already,

42:09 the short set of questions

42:11 intended for general populations 5 years and older.

42:16 You saw those 6 questions

42:17 covering 6.

42:19 Uh,

42:19 unique domains of functioning.

42:22 We also developed,

42:23 the Washington Group also developed an extended set of questions

42:27 that is 34 questions

42:30 over

42:30 10 domains of functioning

42:32 and begins to get at

42:34 one of the big gaps that was uh presented earlier,

42:38 psychosocial functioning.

42:40 We realized that

42:41 those types of questions

42:44 weren't really,

42:45 um,

42:46 um.

42:46 Designed

42:47 for survey for censuses

42:50 and that's why they weren't included in the short set

42:53 in an extended set of questions

42:55 where there's more room,

42:56 more time,

42:57 you can go into issues of psychosocial functioning.

43:00 There's also

43:01 um an in-between set of questions.

43:04 We call it the short set

43:06 enhanced version.

43:07 It's 12 questions

43:09 that cover 8 domains of functioning.

43:12 So that if for some reason you can't fit

43:14 34 questions

43:15 into your survey,

43:17 maybe you can fit 12,

43:18 and those 12

43:20 include the short set of questions that we already

43:23 talked about,

43:24 plus upper body functioning that was missing from the short set,

43:28 uh,

43:28 specifically,

43:29 and

43:31 issues of

43:32 anxiety and depression,

43:34 getting at psychosocial functioning.

43:36 The other thing that is emphasized in the course

43:39 is the child functioning module

43:43 developed by the Washington Group in collaboration with UNICEF.

43:47 And this set

43:49 addresses functioning domains relevant to children

43:52 either

43:53 2 to 4 years of age,

43:55 preschool children,

43:56 or 5 to 17 school-age children,

43:59 and the domains covered include

44:02 learning,

44:03 for example,

44:04 focusing attention.

44:06 Coping with change

44:07 and behavior,

44:08 among others.

44:09 These domains weren't included in the other Washington Group sets,

44:14 but these are very,

44:14 very relevant and pertinent

44:16 to

44:17 child functioning and development,

44:19 so they're included here.

44:21 And at this point,

44:22 I'll hand over to my colleague,

44:24 Dan.

44:25 There you go.

44:25 Hi,

44:25 uh,

44:26 uh,

44:26 thanks,

44:26 Mitch.

44:27 Um,

44:27 yes,

44:27 I'm Dan Moss.

44:28 I'm a,

44:29 a

44:30 6 year old white male with ever

44:32 Thinning and graying hair,

44:34 who's almost as good looking as Mitch,

44:36 though not quite.

44:38 Um,

44:38 so the,

44:39 uh,

44:40 uh,

44:40 our course is divided into two parts.

44:42 The first has to deal with a lot of what Mitch has been talking about and the previous,

44:46 uh,

44:46 presenters,

44:46 and that's identifying people with disabilities

44:49 and how to do that

44:51 in surveys and what are the best practices for trying to collect that information.

44:55 And identifying with people with disabilities

44:57 is obviously important for several reasons.

45:00 First,

45:00 it tells us the prevalence of disability.

45:03 It tells us the patterns of prevalence,

45:05 how disability is related to things like age or gender or region of residence.

45:12 And once we identify people with disabilities as uh Pepe was talking about earlier,

45:17 we can start to disaggregate outcome indicators and

45:19 we can compare the outcomes between people with

45:22 and without disabilities.

45:24 This is very important because it,

45:26 it gives us the,

45:27 the scale and scope and nature

45:29 of the um

45:31 issues that people with disabilities are facing.

45:34 But it's really only the beginning of what data analysis should be.

45:37 The next slide.

45:41 We have to go beyond just identifying people with disabilities.

45:45 If you're going to develop policies

45:48 and programs that address the uh the gaps,

45:51 we need to understand how the environments that people with disabilities live in.

45:56 So we start

45:57 looking at measuring the environment and

45:58 measuring those barriers and those supports

46:01 and we talk more about how do we analyze the data that we're collecting.

46:05 And we have some examples relating to poverty and also

46:08 to measuring inclusive

46:10 education.

46:10 So we can go beyond just

46:12 documenting a problem and trying to get the

46:15 information we need to solve the problem.

46:17 Next slide.

46:21 And so how the course is structured,

46:23 um,

46:23 uh,

46:24 there's,

46:24 as you just saw,

46:25 there's a bunch of modules.

46:26 Each module has a set of required readings.

46:30 Uh,

46:30 then there are pre-recorded videos and PowerPoint presentations that you can,

46:34 they are self-paced that you can,

46:35 uh,

46:36 go at your own,

46:37 your own speed.

46:38 They include knowledge checks and quizzes,

46:40 and in the end,

46:41 of course,

46:42 and additional resources if you want to

46:45 go into these issues,

46:46 uh,

46:46 more deeply.

46:48 And finally there is an end of course exam so you can

46:51 be certified as having um uh gotten up to speed on disability data issues.

46:57 Next slide.

47:00 And then the target audience for this is basically

47:04 anybody and

47:05 in the,

47:05 in the working in development and uh to uh

47:09 um to uh improve their capability to use and interpret data

47:14 and that includes World Bank Group staff

47:16 um but also uh clients uh including statistical offices or line ministries,

47:22 disability focal points.

47:24 Uh,

47:24 and,

47:24 and our development partners,

47:26 so that includes organizations of persons with disabilities,

47:29 other civil societies or or

47:31 or international bilateral aid aid agencies.

47:34 Any anyone really working on these issues,

47:37 um,

47:38 uh,

47:38 can,

47:39 uh,

47:39 I think this course is suited to you whether you are

47:42 absolute beginner or whether you have some experience with disability data

47:46 and just want to get into it

47:47 a little more deeply.

47:49 Next slide.

47:50 I think that's it.

47:51 Yeah,

47:52 so,

47:52 uh,

47:52 so we,

47:52 we,

47:53 uh,

47:53 hopefully you'll

47:54 find the course useful and enjoyable and we'd love to hear any feedback you have

47:59 on it.

48:00 Thank you.

48:01 Thanks,

48:02 Dan and Mitch.

48:03 Um,

48:03 really,

48:04 thank you very much.

48:04 That was very,

48:05 very helpful.

48:06 And again,

48:07 we're really excited about this course

48:09 and you know,

48:10 just to emphasize that this is both a course that can be useful,

48:14 used by World Bank staff but also

48:16 by,

48:16 by everybody else.

48:18 So please,

48:18 our external partners do feel free to,

48:20 to use it.

48:22 Um,

48:23 so

48:24 I just wanted to come back to a point that was

48:27 flagged in the chat box that I think is really important.

48:29 We've been talking about.

48:31 The dearth of data as it relates relates to social psycho disabilities and I was

48:36 wondering whether Jennifer would like to come in and just say a word on that.

48:40 Jennifer.

48:49 Um,

48:49 hi.

48:51 Thanks,

48:51 uh,

48:52 Charlotte.

48:52 I,

48:53 I just put something in the chat that the Washington

48:55 group is continuing to develop questions on psychosocial disability.

48:59 We have a

49:00 Um,

49:01 a couple of

49:03 potential questions that we're trying to find,

49:05 trying to do some testing on,

49:07 um,

49:08 and we'll

49:09 be moving forward on that.

49:10 So,

49:11 just everyone stay tuned.

49:12 There may be another short module.

49:15 We've

49:15 tried to do more in intellectual disability.

49:17 It's a very difficult area.

49:19 Um,

49:20 we get a lot of questions about that.

49:23 So if

49:24 there's,

49:24 um,

49:25 anyone out there who has some

49:27 ideas about how one might approach that,

49:28 we'd be really interested in hearing that,

49:30 because that's another area.

49:33 Thanks.

49:34 Thanks,

49:34 Jennifer.

49:36 Charlotte,

49:36 if,

49:36 if I could just,

49:38 um,

49:38 if I could just add on to what,

49:40 what Jennifer was saying,

49:41 just to put this in a little bit of context,

49:43 uh,

49:43 the Washington group develops questions not for

49:47 themselves

49:48 or for one particular country,

49:50 but for all countries,

49:52 and one of the big challenges is developing a

49:55 of countries that can be,

49:56 sorry,

49:57 a set of questions

49:58 that can be used

49:59 cross-nationally

50:01 so that they're relevant,

50:02 the same questions

50:04 are relevant and can be used

50:05 in different countries,

50:07 in different cultures,

50:08 in different languages,

50:09 and in that way we get

50:11 comparable data

50:13 internationally.

50:14 So that's,

50:14 that's a big challenge.

50:18 In developing these questions,

50:20 not just

50:20 in isolation,

50:21 but,

50:22 um,

50:22 but globally,

50:23 yeah.

50:25 Right,

50:25 so I also want to just,

50:26 you know,

50:27 acknowledge that

50:28 what is it a week ago,

50:29 a week and a bit ago we had the Global disability summit,

50:33 um,

50:33 and there were a number of,

50:35 um,

50:36 a number of commitments that were made around data.

50:40 I know that the International Disability Alliance is going through

50:44 all the commitments and will be posting the commitments,

50:46 um,

50:47 you know,

50:47 to the public.

50:49 So it would be useful for us to go through those commitments to see

50:54 which are the commitments that are linked directly to disability data

50:59 and how can we,

51:00 you know,

51:00 how can we support,

51:01 how can we provide technical assistance,

51:03 how can we help countries

51:05 meet those commitments.

51:06 So just wanted to flag the importance of the summit

51:09 and the work that's been happening in in that space.

51:13 Great.

51:14 So with that I'd like to then move to our um last speaker.

51:19 And um here I have the pleasure of introducing my colleague

51:24 um who's been very central in getting this particular e-course up and,

51:29 and out.

51:30 So,

51:31 um,

51:31 Marie Kristenin and Marie is a senior social development specialist

51:37 with the World Bank,

51:38 and she's going to close us out with some

51:41 closing remarks.

51:43 Over to you,

51:43 Marie.

51:45 Thank you so much,

51:46 Charlotte,

51:46 and hello everyone.

51:48 So my name is Maria Kosinen.

51:50 I'm a senior social development specialist

51:53 here at the World Bank.

51:54 I'm a white woman

51:56 from Northern Europe

51:58 with short,

51:59 light brown hair.

52:01 I have green eyes,

52:02 and today I'm wearing a small silver hoops

52:07 and a white shirt with some black wavy

52:11 patterns.

52:14 What a rich discussion and presentation we have had today.

52:18 I really appreciate all of the speakers

52:21 that have joined us today and have highlighted the importance of collecting

52:26 data on persons with disabilities

52:29 and how it has been done in various ways.

52:32 We look forward to learning more from your experiences in the future

52:37 on this important topic.

52:41 I'm also very excited to see the e-course launched.

52:46 I have a lot of hope that this course will spark a rise

52:50 in the disability disaggregated data we see

52:54 so that we can all do better to ensure

52:57 our work is more inclusive of persons with disabilities

53:00 and targeting the gaps that we are able to better identify with this data.

53:08 This e-course was designed in cooperation with

53:11 quite many partners including our consultants,

53:15 Dan and Mitch

53:16 and Wei Chen uh with uh Sightsavers,

53:19 with Elsie

53:20 and her colleagues from there

53:22 and the World Bank Open Learning Campus.

53:26 This e-course will be part of their course selection

53:30 available for all World Bank staff and for external partners as well.

53:35 We also want to thank our bank colleagues for their comments and

53:40 and uh guidance.

53:43 I would also like to mention that this e-course

53:46 was funded by Partnership Fund for the Sustainable Development Goals,

53:52 SDG Trust Fund,

53:53 and we wish to thank them for their

53:55 very valuable support to finalize this course.

54:01 We know that disability inclusion requires everyone working together,

54:07 so we would be grateful if you could kindly share this e-course widely

54:11 with your networks.

54:15 We will also be providing a recording of this session.

54:18 That we hope you will share as well,

54:21 so that others who were not able to join this session

54:25 will be able to listen to the presentations and have more background

54:29 information on the importance of such e-course.

54:33 You can see,

54:34 I think Anna has already shared the link and maybe Anna you can.

54:38 Share it again

54:39 in the chat box now and for our external guests,

54:43 we will circulate information on how to access the course

54:47 with the follow-up

54:49 email for this event.

54:52 I want to say a final thank you

54:55 to all of you for joining us today.

54:57 We look forward to seeing the impact.

55:00 Um,

55:02 you're welcome this back to Eco.

55:04 So thank you so much once again and back to you,

55:07 Charlotte.

55:09 Well,

55:09 thank you very much,

55:10 Mari.

55:10 I see there's quite a lot of excitement in the chat box around um around the e-course,

55:16 um,

55:16 and again,

55:17 please,

55:17 you know,

55:18 have a look,

55:19 see if it works for you.

55:20 If it doesn't,

55:21 let us know because we want to make sure that it actually is useful.

55:26 So please do not feel like,

55:28 you know,

55:28 if it's not working,

55:29 you can't,

55:30 um,

55:30 you can't communicate with.

55:33 So I would just like to thank you all for coming.

55:36 We've had a really great set of speakers,

55:38 hm,

55:39 a lot of excitement around the course,

55:40 hmm,

55:42 and you know,

55:43 the,

55:43 the proof of the course is going to be uptake of how many people actually

55:48 get on it and do it.

55:49 So encourage you all to have a look.

55:51 Thank you all very much and

55:54 stay in touch.

55:58 Thank you very much for joining us today.

56:02 Thanks everybody.

showAllTimestamps
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transcript
Good morning, good afternoon and good evening to everyone who has joined us today for this event. Today's event is towards an inclusive world, collecting better data on disability. My name is Charlotte McLean Nhlapo. I'm the global disability advisor at the World Bank, and I'm a brown woman with green eyes. I have long brown hair. I'm wearing large gold hoops, and today I have an orange sweater on. And I'm wearing black rimmed glass or reading glasses. So before we begin today's discussion, I want to point out some accessibility features that we have for this launch. First of all, we have international sign interpretation that will be spotlighted throughout the dis the discussion. Secondly, we have closed captioning. If you would like to access this feature, please go to the bottom of your screen and select CC the CC icon and it and select show subtitles. Alternatively, we are placing the streaming link in the chat box right now and so if I could do that, that would be great. We would encourage you to use the chat box to introduce yourselves. Let us know the name of your organization you represent, and if you wish, please do tell us where you're joining us from. Additionally, please post any questions you may have for any of the speakers during the duration of this session, and we will try to get to those in the course of our discussion today. Finally, we will be recording today's discussion. And it will be shared along with the PowerPoint um slides that presenters put forward, and this will happen, this will be shared in the next coming days. So without further ado, I would like to introduce Ingo Wiedhofer. Um, Ingo is the practice manager in the social sustainability and inclusion unit at the World Bank that hosts the disability inclusive development team. So it's wonderful to have Ingo with us. I know Ingo has been a great proponent of getting this course done and out and out there. So without, without further ado, over to you Ingo. Thank you very much, uh, Charlotte. Um, and good morning, good afternoon, good evening, uh, to all of those of you who have joined us, uh, and thank you for joining us for this important event today. Um, as Charlotte mentioned, my name is Ingo Widhofa. Um, I'm the practice manager of what we call our global unit in the social sustainability and inclusion, uh, global practice at the World Bank. Um, I identify as a, a, a white male in my early 50s. I have short brown hair and brown eyes, and I'm wearing, uh, blue reading glasses today. Uh, I'm joining the meeting from my home office, which has been my workstation for the last 2 years, pretty much. Um, So, including persons with disabilities and expanding equitable opportunities are at the core of the World Bank's work to foster sustainable and inclusive communities. And this is closely aligned with the institution's mission to end extreme poverty and promote shared prosperity. Um, operationalizing, however, this disability inclusive development and realizing the rights of persons with disabilities requires quality, policy relevant data on disability and disability desegregated human development indicators. To date, unfortunately, our development efforts are often constrained by the lack of timely and relevant disability disaggregated data. Um, the lack of this data, um, uh, the lack of adequate and current data on the prevalence, needs, and development outcomes of persons with disabilities in low and middle-income countries remains a significant challenge. Even though disability data collection methods and tools have evolved in recent years, persons with disabilities often too often remain invisible in many forms of development data collection. There's thus a need for systematic and and, and, and, and systematic improvement of the production, global statistics on disability based on internationally comparable uh disability data sets. One of the World Bank's 10 commitments on disability focuses on scaling up disability data collection and use guided by global standards and best practices, such as using the short set of questions on disability developed by the Washington uh Washington Group on, on Disability statistics. Ensuring that disability desegregated data is then also accessible and available to policymakers, development practitioners, academics, civil society, and other interested stakeholders is crucial to advancing the evidence-based programming for disability inclusion. Disability desegregated data is also central to expanding the knowledge base on access to services and the participation of persons with disabilities. So I'm thrilled to be here today at this important event that focuses on collecting better data on disability. We have an excellent lineup of speakers today, both from both inside and outside of the world. who will speak about recent efforts to collect better data on persons with disabilities and the lessons that they have learned along the way. I'm also delighted that today we, we are able to launch a new self-paced World Bank e-course, uh, entitled Collecting Data on Disability Inclusion that offers technical knowledge to World Bank staff and development partners on disability disaggregated data to support more robust activities for inclusive development. The course includes an introduction to the Washington Group question sets which you will hear more about today. I hope you will all find the event informative and that the e-course will also be a useful tool to help guide us all in collecting better data on the stability as we make progress towards a more inclusive world. Charlotte, with that, uh, back, back over to you. And thank you very much, Ingo, and really just again, thank you because I know you've been really pushing us to get this course out and so it's out there. We're launching it today and we're really excited and glad that you could be here with us to share our excitement. I'd like to now move to um Sophie Mitra, Professor Mitra, and Sophie is the director of the Research Consortium on Disability at Fordham University, and Sophie, if you could please give us a global overview of the status of Disability Data Initiative. Over to you, Sophie. Thank you. Uh, can you hear me OK? Yeah, you sound perfect. Go ahead. OK, great. All right, um, hi everyone. My name is Sophie Mitra. I'm a professor of economics at, uh, Fordham University. I'm a white, middle-aged woman with gray hair, and today I'm wearing a blue sweater. Um, so next slide. Um, so 184 countries have ratified the United Nations Convention on the Rights of Persons with Disabilities since uh 19, um, since 2006. And um Given these uh advances at the policy level internationally, but also with some countries adopting national policies and legislations, uh, of course we can wonder have the rights of persons with disabilities been realized. they've been realized in some countries only. And for countries where rights have been realized, what is it that worked and how. So to answer such questions, we need we need data. We need to collect a lot of data. So what kind of data do we need? We need data produced by various stakeholders and in particular by organizations of persons with disabilities. And such data will go a long way in understanding the situation of persons with disabilities and to inform policy and advocacy efforts. At the same time, these efforts will not provide nationally representative information on individuals and households with disabilities, and they may be difficult to compare across countries. So that's where national statistics based on household surveys and censuses can be very useful. Uh, to provide estimates for indicators that document whether equal rights have been respected. So statistics need to be based on concepts that are in line with human rights and in human rights approach to disability. They need to be desegregated by disability status and also reflect the diversity of people with disabilities and various aspects of their lives. Next. So that's where the disability data initiative comes in. Uh, it was, it was launched last June and um it, its website has a report, uh, data tables, as well as country briefs, uh, next. Um, so the, the, I'm going to read out uh the website is disabilitydata. AC.fodham, F O R D H A N.EU. And next, Um, so this, this is the website for the visions table. Next. Um, so I'm going to give you an overview of some of the main results. So the first part of the result is about the availability of functional difficulty data. So functional difficulty data consists in reviewing functional difficulty questions in censuses and national surveys around the world. Uh, why do we focus on functional disability, functional, um, difficulty questions? It's because, uh, these are the questions that have been tested internationally and that we know are comparable internationally and follow the recommendations of the United Nations for disability collection data in censuses. So what do we find? The report finds that disability questions of any kind are absent for 1 in 4 countries. And for 65% of household surveys and censuses, so there's absolutely no information on disability in that case. That means that in many countries surveys and censuses, people with disabilities continue to be invisible in national statistics. At the same time, and this is more encouraging, we find that uh the functional difficulty questions have been increasingly adopted. Um, and in particular, uh, those that, uh, are, um, similar or identical to the Washington Group short set of questions. Overall we find that fewer than half of countries and only 16% of the household surveys and censuses under review have internationally comparable functional difficulty questions, so there are some important advances to be made in the future. Next. Now, um, the, the report also has results, uh, for the, with the analysis of survey and census data for 41 countries. The 41 countries were countries for which we had access to national surveys and census data with functional difficulty questions. What do we find? Well, first we find that functional difficulties are not rare across the countries under review. The median share of the adult population with functional difficulties stands at 13%. So that's very close to the 15% global estimate of the World Report on Disability of 2011. For households, the median share of households with add-ons with functional difficulties is at 28%, so more than 1 in 4 households. Has a functional difficulty next. So the report then goes on to document a variety of inequalities between individuals with and without functional difficulties and between households with and without functional difficulties in terms of outcomes related to education, work, health, and standard of living. The disability gap, which is a disadvantage for persons with functional difficulties compared to functional persons with no functional difficulties, is consistently found across countries in terms of educational attainment, literacy, food insecurity, exposure to shocks, asset ownership, and health expenditures. We also do a multi-dimensional analysis and that's what's represented on the bar chart in the slide. And so at the individual level, that means that we consider the multiple deprivations experienced by an individual. So for instance, not working and not having adequate housing would be two deprivations experienced by an individual, and we do experience, we do find a consistent and large disability gap for multidimensional poverty. So what's next? The next report will be published in June 2020 and we'll add more. Um, we'll add more microdata analysis and we'll review recent surveys and censuses, uh, since 2019. So thank you so much for your attention and I look forward to your comments or questions. So thank you very much Sophie, thank you for sticking to the time um and I would really encourage colleagues who've joined us to, to check out the DDI's website, there's some really very good reports there. And I think one thing, one, a lot of points stuck with me, but one that I really, that really stood out was that disability questions are absent from 1 in 4 countries censuses, and, and I think that's quite a stark number, and I think it just tells us about the deficit of disability data. So now we would like to move to our next speaker, and I'm going to turn to Pepe Montes, and Pepe is a data scientist at the bank, and Pepe has been working with the disability team as well as You know, just continuing to drive the importance of having disability disaggregated data, and if you could tell us a bit more, Pepe, about the work that you're doing in collecting this disability inclusive data, and you've got 7 minutes. Yes, hello. My name is Jose Montes. I go by Pepe. I am a Peruvian citizen, um, browns screen, brown eyes. I'm wearing blue light glasses and I'm wearing a green t-shirt. So I'm going to tell you a little bit about the commitment of the bank to gather information and what the challenges are to actually gather the Washington Group's short set of questionnaires. So in the next slide, you're going to see the goal. Which is the bank has the goal to support 30 other countries. To build capacity to reduce gap in the ability of core data. Including the segregation data by sex and disability. So that's the commitment support the National Statistics Office to gather desegregated data. To, uh, carry information on sex and disability. So in our next slide you're going to see. What the questions, what the group short set of questions are. The The problem was not only the lack of information. The lack of number of surveys or censors asking for this information, but also in the way they were asked. So trying to improve the way the information is gathered. The Washington group said Several questions to address this issue. And the minimum, minimum number of questions to have a proper profile of people with disability is the short set. That includes 6 questions. That goes to difficult seeing, difficult hearing, difficulty in walking, difficulty remembering and concentrating, difficulty in progressing yourself, and difficulty for communicating. So this is the minimum set of questions to have a proper profile of people with disability to know. Whether uh Who they are and what they need. So, um, but This is a very important first step on that information, but the challenges are Uh, on how to implement this in the survey. So in the next slide, you're gonna see that in the next slide, you're gonna see that the bank already is supported worldwide 31 countries to gather this information. So, um, it is a progress, yes. Um, the challenge is this, as you can see on the table is a period 2015, 2020. First challenge, uh, not every country has household surveys every year. We also have problems trying to make countries to have periodically household services so we can make sure not only Um, uh, people with disability, people without disability or anything at all. So that's the first challenge, but I'm going to talk a little bit about that in the next few slides. So. The next slides. Uh, show the main difficulty of the bank. To increase the number of household service. And the first challenge is we are not the only players advising the National Statistics Office. And in most of the cases, we are not financing any survey, so we support and we advise, but we don't have the power to actually impose the inclusion of the Washington group short set of questions. Um, we all know that there is, uh, we have a commitment and we advise. Um, but we, it, it's, it's a lot of task. It's a huge task to convincing the countries that they need to have, to add this question. So that's the first challenge. The second challenge is that not all the surveys are are created to estimate or to measure individual characteristics. So it's not only that we have a challenge trying to not being the main player to try to convince them to add them, but there are some surveys that report very little. Individual characteristics. The education model is very limited. Health model does not exist. Labor model is very limited. So the, the survey itself is not designed to measure, um, individual characteristics, and that makes a challenge to actually. Convince the NSO to include the the Washington Washington Group short set of questions. So 2 additional challenges are shown in the next slide. And you can see that the challenge also is Once we got them, but once we get the jazz. This is a new topic for most people, for most countries. So training has to be provided. And training to the enumerators, to supervisors, to the people who do the consistency checks. And this is a very critical point, um, not only because it's a new topic that people have to learn, but The definition of who has disability or not in the past was very subjective. Now with the Washington Group shorts set of questions, it's a little bit suggestive, but people are still not always comfortable revealing this type of questions, so Uh, training to enumerators must be, is critical to actually have information of quality. The final challenge is that Since in some countries, people with disability. are very low share of the total population. A survey might not be the best instrument to gather this information. A census could do it, but a survey might not be the case if, if there is a very small population share of the population. Uh, then the sample size has to be very big. To have a proper estimation of the share of people with disability or any share of people with small share. In, in the population and that means increase the, the sample size and increase the overall price of salary. So those are the main challenge to increase the number of surveys with the Washington group short set of questions. And that's it. Thank you for your attention. Thanks, Peppa. Thank you very much for setting out, um, some of the challenges. I mean, I think just to reiterate that the bank is not the only player. Uh, that not all countries are convinced that they want to collect the data in the first place, so some work needs to happen in that regard. And then for just mentioning that there are constraints around the instruments themselves, the surveys themselves is important. And of course the importance of ensuring that we're training um enumerators is something that certainly will be of interest going forward. So thank you very much. Now I want to move to our next colleague, um, our next speaker who's also a World Bank colleague. Maria Elena Garcia Mora, uh, and Maria Elena is a senior social development specialist and she recently led the launch of a report called titled Inclusion of Persons with Disabilities in Latin America and Caribbean, and this report has a huge amount of data. And so Maria Elena, as you start to talk, please just pay attention to what does the data in fact tell us. Thank you so much, Charlotte. And good morning, good afternoon, and good evening. Um, my name is Marielena Garcia Mora. I'm a Latin woman with very long wavy, dark brown hair, green eyes. I am wearing um blue earrings and a blue, a blue sweater on top. As Charlotte mentioned, we recently launched this regional report on disability inclusion in the region and would like to talk about The data quality and availability in the region, as well as give some ideas of the insights um of the main findings of the report. And in the next slide, you'll see how we'd like to start with the recognition that the last decade has seen progress on data collection efforts. We see that in the 1980s, 4 out of 32 censuses included disability desegregated data, which went up to 26 out of 32 in 2010. This goes in hand with progressive legal and institutional recognition of the rights of persons with disabilities. And particularly with the universal ratification of the United Nations Convention on the Rights of Persons with Disabilities, um, by all of our Latin American and Caribbean countries with some recent changes, um, to the Caribbean, particularly in the last couple of years. Article 31 of the United Nations Convention specifically establishes the obligations on statistics and data collection. Yet we see still that many challenges remain. So in the next slide we'll see that in addition to the number of countries. that now collect disability segregated data. We also see that impairment-based approaches have been progressively phased out. And Professor Meacher already started discussing about the functional, um, functional way of collecting data, and Pepe Montes started talking about the Washington Group's short set of questions that we consider the gold standard for disability data desegregated, um, collection. As you saw, the Washington Group set of questions explores a person's difficulties in six core domains, and it has allowed to rely on self-perception but also giving, giving the information on severity of disability, allowing as well a better understanding for policymaking. So despite that, we have seen, and you can see uh in this map, that there's a huge adaptation of the Washington Group short set of questions in the censuses in, in the 2010 round in Latin America and the Caribbean, we see that in the 2000, only 7 countries included that, and it went to 21 in 2010. Yet most of these countries only partially adopt um the Washington Group short set of questions. Many of them still include some screener questions that before the short set asked about whether a person has disability or not. So going back to some potential issues of order reporting due to this um due to stigma associated to certain questions or the way that it is asked. We have some countries that do not ask all of the domains that they change because of translation and or that they change specifically aspects, um, particularly when it comes to asking questions in terms of concentration or intellectual functioning in particular. And the next the next please. The slow adoption of the Washington Group set of questions is also noticeable in household surveys. So we not only see that there's many household surveys that still do not include A particular question for disability, uh, for persons with disabilities, we still have 10 countries that list disability as a reason for economic inactivity only, or that they ask if a household member receives a disability-related cash transfer or whether disability as a reason for children not attending school. That limits a lot the analysis that this is the case in countries such as Argentina, such as Brazil, such as Uruguay. For those countries that have indeed adopted, um, of the 18 recent household surveys, only 4 countries fully adopt the Washington Group short set of questions, and other 4 adopted, um, again, partially. The next one, please. But if we are to pinpoint where do we have the biggest gap in understanding the barriers of persons with disabilities, it has to be that there's little to no data on persons with intellectual psychosocial disabilities. Um, we still see that the questionnaires across 14 of household surveys include over 20 different ways of asking for intellectual, psychosocial disabilities, with some notable stigmatizing vocabulary still being used, like mental retardation, like craziness, mental disorders. So not only we see that there's many different ways of asking, but again, continuing with stigmatizing languages. In addition, numerous census and household surveys also leave behind those that are in institutions and long-term rehabilitation centers, hospitals, prisons, or hospice care centers. We only have, uh, we have 12, um, censuses that did not reflect any collective living arrangements, which again renders invisible an important segment of persons with disabilities. National Statistics Office and Organizations of Persons with Disabilities have led different efforts through specialized surveys. We have 11 countries in our region that have specialized surveys for um understanding the barriers faced by persons with disabilities. So that also has strengthened some of these data collection efforts. But if we have to finish with 3 main messages um for this analysis. The first one is that, again, disability data collection has progressed immensely in our region, but there's still many challenges related to comparability, quality due to stigmatizing languages or lack of training or enumerators, and leaving behind some important subgroups. The second one is that sectoral efforts to strengthen disability data collection needs to be strengthened and the bank is working with uh our education colleagues in particularly on education management information systems. But the last one and the most important one I think is that existing data is sufficient to conduct robust analytics. The report already showed how 15% of students are out of school. that have disabilities. We see also issues related to poverty, as Professor Mitra mentioned, vulnerability. We have data on, on labor outcomes and many other aspects that we can still already show despite that data still needs to improve. So I think that's the last part and with that, we invite you to, to see the report and perhaps go in further detail about the outcomes of, of this data as well. Thank you so much, Robert. Thank you Maria Elena, and please do look at the report, it's been put into the chat and feel free to ask questions um and and post them in the chat. So Maria Elena, thank you very much and um you know, very interestingly you mentioned that the Washington short set in some countries is partially used and that often the questions are not adopted in totality and I mean that obviously raises some, some challenges and that they continue to be issues around translation. Um, and then I think thank you very much for flagging the point that there is little or no data on persons with intellectual or psychosocial disabilities, and this is, this is a challenge that, um, I think this sector needs to think about a bit more. Um, and then of course also flagging the really important point that often gets overlooked and that is that. Persons with disabilities that are in institutions or in long-term care facilities often are not being included in in these surveys and um and and that obviously means you're not, you know, you're not counting or including large groups of the population. So thank you very much for that. Now we'd like to turn to site savers. Um, SiteSavers probably needs no introduction to this group, but, um, Savers is an organization whose work focuses on the inclusion of persons with disabilities, and we're super fortunate to have Doctor Elsie Makachia. Um, and Elsie is a project manager at Sitesavers, and so. Elsie, it would be great if you could talk to us about some of the lessons learned on collecting disability. Inclusive data at Sitesavers. What have you done? What's your approach been? and over to you. Thank you, Charlotte. Hi everybody. My name is Elsie Makachia. I'm the inclusive data project manager at Sitesavers. I'm really pleased to be speaking to you this afternoon. I'm a black woman, I'm wearing red, uh, reading glasses and a green top, and I've got long, um, brown hair. So, um, get to the next slide, please. Promoting equality and inclusion of people with disabilities has been at the heart of SiteSaver's mission and is core to our advocacy and work in disability inclusion, health, education, political participation in other areas of our work. At So Savers, we started looking at disability disaggregated data in 2014. And since then, our work on disability aggregation using the Washington Group short set of questions has progressed significantly. From undertaking pilots and research studies to us now collecting disability data as part of routine monitoring and inclusive eye health. Projects and looking at how we can strengthen the use of the Washington Group questions across our programs, sharing our challenges and learnings with others in the development sector. Increasingly, we're taking a more holistic approach. At how disability intersects with other characteristics such as wealth, location, education level, race, and others. Sitesavers is a co-founding champion of the inclusive Data Charter, a multi-stakeholder initiative bringing governments and organizations together to collectively advocate for and take action on inclusive data, and our work on disability data is key to our inclusive data charter commitments. Next slide please. As you can see on the table, um, to the left of the screen, um, this gives some examples of some of the work that Safesavers has taken on disability-inclusive data. Um, I've given an example of one particular project which is the Right to Health project in Pakistan, which, in which we work with partners such as the LRBT Eye Hospital to restore and protect people's sights and ensure that health services are accessible for people with disabilities and other marginalized groups. This was a co-funded project by UK AIDS through the Aid Match Initiative and ran from 2018 to 2021. And we use the Washington Group short set of questions as baseline, midline, and endline of the project. And our disability questioning was administered through a mobile application, data capture application called Comcare. We actually found that services used by uh people with disabilities was much higher than what we'd anticipated and was actually consistently higher at primary care level. And we use, we use the project findings to lobby governments, the government in Pakistan, on the inclusion of disability questions within surveys and censuses and the integration of disability data and SDG reporting, and I'm pleased to report that the government of Pakistan is actually going to be including the Washington Group questions this year in their census. Next slide, please. Overall, what we've observed globally and organizationally over the last few years is a greater awareness of the importance of disability data. With the Washington group questions being increasingly used more widely, but there's still a lot more work to be done to strengthen the collection and use of disability data. So the key learnings from our work as sightsavers are at a more practical level. Um, most importantly, is investing in training of staff and partners, and that's in integrating disability-inclusive data collection within job descriptions alongside ensuring staff and partners have the skills to ensure data collection is done consistently and accurately. Moving on to the contextual awareness and adaptation, you need to be cognizant of the local context to ensure that data collection tools such as the Washington questions are translated well. By considering the cultural and social norms at play, and adapting the data collection approaches as needed. You also need to engage your, your respondents, that's the, the, the people with disabilities across the data cycle. So you need to ensure that you get informed consent for their participation within the data collection process and ensure that their feedback mechanisms in place so that they fully understand what's expected of them, how the data will be collected, used and stored, and what's going to happen to the feedback that comes as a result of the findings of the project or program. At a broader level, we've also learned the importance of the national capacity building and system strengthening. So, um, with that, more governments are including disability data collection within the census and surveys, but we need to invest in resources to continue making progress. In our experience, working with governments and partners. It's important in understanding what's needed alongside advocating for investments in the collecting, in the, in the collection of disability-inclusive data. So capacity building to help governments to analyze and use the data and being able to show them why data is critical to their wider system strengthening and driving more inclusive, equitable policies and outcomes for all. Then partnerships and collaborations are really important between different actors, including working with organizations of people with of persons with disabilities, civil society, and others is really critical to addressing the barriers and gaps on disability inclusive data. For example, we're seeing more recognition of the importance and relevance of non-official data. Sources collected from CFOs and communities to complement official data collection. For a more inclusive COVID-19 response and recovery. So multi-stakeholder collaboration is key to collecting and using better quality disability-inclusive data and can also help to facilitate knowledge exchange on best practice and learning so we can collectively drive more momentum and action. Thank you very much for listening. And over to you Charlotte. Thank you very much, Elsie for a very rich, rich presentation and thank you for sharing the Pakistan example and how your work has then gone on to influence the government's decision to include the Washington Group questions in in the census. So it really shows that the data can make a difference and our work is important in that regard. And then also for noting the, the importance of being aware of the cultural context and and that links very much to the point that Maria Elena made around translation. So thank you. Now, I'm really excited and I almost feel like we need to have a drum roll here to finally launch our e-course, collecting data on disability inclusion. And to help us launch this, we're really fortunate to have Dan Mont, who's the CEO and co-founder of the Center for Inclusive Policy. As well as Mitch Low, who's a disability data consultant. Dan and Mitch, over to you to give us a quick overview of this really exciting e-course. Thanks so much, Charlotte. Um, I'm Mitch Loeb. Um, I identify as a moderately handsome 69 year old white male with gray hair, blue eyes, and black glasses, and I'm wearing a black sweater today. Um, Charlotte, you took away the drum roll from me. I should have had it, uh, on tape, but, uh, that's exactly what we needed. Um, Dan and I worked, uh, worked hard with, uh, World Bank staff to put this together, this course together, and we're really happy to, uh, present an outline of it for you today. Um, I'd like to thank, before I begin, the previous speakers because I think they really laid the groundwork for what we know about this. data collections. What's been carried out in, in recent years, some of the pitfalls of the past, and some of the challenges that are still being faced by organizations of people with disabilities, by government statistical offices in collecting valid and reliable disability data. Can we go to the next slide, please? So, um, I'm gonna just give a brief introduction to a few items in the course and then Dan will pick up from where I leave off. There are objectives, clear objectives for this course. We want to provide technical knowledge on disability desegregated data to support inclusive. Development. Within the World Bank, there are a number of programs that will rely on collecting quality disability disaggregated data and we want to provide the technical knowledge to do that. We want to impart information and tools on data collection, analysis, and use of disability data. So not just the tools themselves, but how to analyze data and how to use those data in a, uh, in a way that can promote inclusion um through projects in the World Bank. And we want to provide an introduction to the questions developed by the Washington Group on Disability statistics. You've heard a little bit about them already. I'm going to give you a little bit more information about them now on the next slide. So what we want to present is uh an introduction to those questions that were developed by the Washington Group and designed primarily for population-based surveys and censuses. These question sets include one that you've heard of already, the short set of questions intended for general populations 5 years and older. You saw those 6 questions covering 6. Uh, unique domains of functioning. We also developed, the Washington Group also developed an extended set of questions that is 34 questions over 10 domains of functioning and begins to get at one of the big gaps that was uh presented earlier, psychosocial functioning. We realized that those types of questions weren't really, um, um. Designed for survey for censuses and that's why they weren't included in the short set in an extended set of questions where there's more room, more time, you can go into issues of psychosocial functioning. There's also um an in-between set of questions. We call it the short set enhanced version. It's 12 questions that cover 8 domains of functioning. So that if for some reason you can't fit 34 questions into your survey, maybe you can fit 12, and those 12 include the short set of questions that we already talked about, plus upper body functioning that was missing from the short set, uh, specifically, and issues of anxiety and depression, getting at psychosocial functioning. The other thing that is emphasized in the course is the child functioning module developed by the Washington Group in collaboration with UNICEF. And this set addresses functioning domains relevant to children either 2 to 4 years of age, preschool children, or 5 to 17 school-age children, and the domains covered include learning, for example, focusing attention. Coping with change and behavior, among others. These domains weren't included in the other Washington Group sets, but these are very, very relevant and pertinent to child functioning and development, so they're included here. And at this point, I'll hand over to my colleague, Dan. There you go. Hi, uh, uh, thanks, Mitch. Um, yes, I'm Dan Moss. I'm a, a 6 year old white male with ever Thinning and graying hair, who's almost as good looking as Mitch, though not quite. Um, so the, uh, uh, our course is divided into two parts. The first has to deal with a lot of what Mitch has been talking about and the previous, uh, presenters, and that's identifying people with disabilities and how to do that in surveys and what are the best practices for trying to collect that information. And identifying with people with disabilities is obviously important for several reasons. First, it tells us the prevalence of disability. It tells us the patterns of prevalence, how disability is related to things like age or gender or region of residence. And once we identify people with disabilities as uh Pepe was talking about earlier, we can start to disaggregate outcome indicators and we can compare the outcomes between people with and without disabilities. This is very important because it, it gives us the, the scale and scope and nature of the um issues that people with disabilities are facing. But it's really only the beginning of what data analysis should be. The next slide. We have to go beyond just identifying people with disabilities. If you're going to develop policies and programs that address the uh the gaps, we need to understand how the environments that people with disabilities live in. So we start looking at measuring the environment and measuring those barriers and those supports and we talk more about how do we analyze the data that we're collecting. And we have some examples relating to poverty and also to measuring inclusive education. So we can go beyond just documenting a problem and trying to get the information we need to solve the problem. Next slide. And so how the course is structured, um, uh, there's, as you just saw, there's a bunch of modules. Each module has a set of required readings. Uh, then there are pre-recorded videos and PowerPoint presentations that you can, they are self-paced that you can, uh, go at your own, your own speed. They include knowledge checks and quizzes, and in the end, of course, and additional resources if you want to go into these issues, uh, more deeply. And finally there is an end of course exam so you can be certified as having um uh gotten up to speed on disability data issues. Next slide. And then the target audience for this is basically anybody and in the, in the working in development and uh to uh um to uh improve their capability to use and interpret data and that includes World Bank Group staff um but also uh clients uh including statistical offices or line ministries, disability focal points. Uh, and, and our development partners, so that includes organizations of persons with disabilities, other civil societies or or or international bilateral aid aid agencies. Any anyone really working on these issues, um, uh, can, uh, I think this course is suited to you whether you are absolute beginner or whether you have some experience with disability data and just want to get into it a little more deeply. Next slide. I think that's it. Yeah, so, uh, so we, we, uh, hopefully you'll find the course useful and enjoyable and we'd love to hear any feedback you have on it. Thank you. Thanks, Dan and Mitch. Um, really, thank you very much. That was very, very helpful. And again, we're really excited about this course and you know, just to emphasize that this is both a course that can be useful, used by World Bank staff but also by, by everybody else. So please, our external partners do feel free to, to use it. Um, so I just wanted to come back to a point that was flagged in the chat box that I think is really important. We've been talking about. The dearth of data as it relates relates to social psycho disabilities and I was wondering whether Jennifer would like to come in and just say a word on that. Jennifer. Um, hi. Thanks, uh, Charlotte. I, I just put something in the chat that the Washington group is continuing to develop questions on psychosocial disability. We have a Um, a couple of potential questions that we're trying to find, trying to do some testing on, um, and we'll be moving forward on that. So, just everyone stay tuned. There may be another short module. We've tried to do more in intellectual disability. It's a very difficult area. Um, we get a lot of questions about that. So if there's, um, anyone out there who has some ideas about how one might approach that, we'd be really interested in hearing that, because that's another area. Thanks. Thanks, Jennifer. Charlotte, if, if I could just, um, if I could just add on to what, what Jennifer was saying, just to put this in a little bit of context, uh, the Washington group develops questions not for themselves or for one particular country, but for all countries, and one of the big challenges is developing a of countries that can be, sorry, a set of questions that can be used cross-nationally so that they're relevant, the same questions are relevant and can be used in different countries, in different cultures, in different languages, and in that way we get comparable data internationally. So that's, that's a big challenge. In developing these questions, not just in isolation, but, um, but globally, yeah. Right, so I also want to just, you know, acknowledge that what is it a week ago, a week and a bit ago we had the Global disability summit, um, and there were a number of, um, a number of commitments that were made around data. I know that the International Disability Alliance is going through all the commitments and will be posting the commitments, um, you know, to the public. So it would be useful for us to go through those commitments to see which are the commitments that are linked directly to disability data and how can we, you know, how can we support, how can we provide technical assistance, how can we help countries meet those commitments. So just wanted to flag the importance of the summit and the work that's been happening in in that space. Great. So with that I'd like to then move to our um last speaker. And um here I have the pleasure of introducing my colleague um who's been very central in getting this particular e-course up and, and out. So, um, Marie Kristenin and Marie is a senior social development specialist with the World Bank, and she's going to close us out with some closing remarks. Over to you, Marie. Thank you so much, Charlotte, and hello everyone. So my name is Maria Kosinen. I'm a senior social development specialist here at the World Bank. I'm a white woman from Northern Europe with short, light brown hair. I have green eyes, and today I'm wearing a small silver hoops and a white shirt with some black wavy patterns. What a rich discussion and presentation we have had today. I really appreciate all of the speakers that have joined us today and have highlighted the importance of collecting data on persons with disabilities and how it has been done in various ways. We look forward to learning more from your experiences in the future on this important topic. I'm also very excited to see the e-course launched. I have a lot of hope that this course will spark a rise in the disability disaggregated data we see so that we can all do better to ensure our work is more inclusive of persons with disabilities and targeting the gaps that we are able to better identify with this data. This e-course was designed in cooperation with quite many partners including our consultants, Dan and Mitch and Wei Chen uh with uh Sightsavers, with Elsie and her colleagues from there and the World Bank Open Learning Campus. This e-course will be part of their course selection available for all World Bank staff and for external partners as well. We also want to thank our bank colleagues for their comments and and uh guidance. I would also like to mention that this e-course was funded by Partnership Fund for the Sustainable Development Goals, SDG Trust Fund, and we wish to thank them for their very valuable support to finalize this course. We know that disability inclusion requires everyone working together, so we would be grateful if you could kindly share this e-course widely with your networks. We will also be providing a recording of this session. That we hope you will share as well, so that others who were not able to join this session will be able to listen to the presentations and have more background information on the importance of such e-course. You can see, I think Anna has already shared the link and maybe Anna you can. Share it again in the chat box now and for our external guests, we will circulate information on how to access the course with the follow-up email for this event. I want to say a final thank you to all of you for joining us today. We look forward to seeing the impact. Um, you're welcome this back to Eco. So thank you so much once again and back to you, Charlotte. Well, thank you very much, Mari. I see there's quite a lot of excitement in the chat box around um around the e-course, um, and again, please, you know, have a look, see if it works for you. If it doesn't, let us know because we want to make sure that it actually is useful. So please do not feel like, you know, if it's not working, you can't, um, you can't communicate with. So I would just like to thank you all for coming. We've had a really great set of speakers, hm, a lot of excitement around the course, hmm, and you know, the, the proof of the course is going to be uptake of how many people actually get on it and do it. So encourage you all to have a look. Thank you all very much and stay in touch. Thank you very much for joining us today. Thanks everybody.
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COLLECTING BETTER DATA ON DISABILITY 02282022
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More than a billion persons globally, about 15 percent of the world’s population, are estimated to have a disability. Most of them live in low- and middle-income countries. This number is expected to increase. However, the lack of data on disability contributes to the invisibility of persons with disabilities. Including persons with disabilities and expanding equitable opportunities are at the core of the World Bank’s work to build sustainable, inclusive communities, aligned with the institution’s goals to end extreme poverty and promote shared prosperity. However, these development efforts can be hampered by poor collection of disability disaggregated data. Therefore, one of the World Bank’s 10 Commitments focuses on scaling up disability data collection and use, guided by global standards and best practices, such as using the Short Set of Questions on Disability developed by the Washington City Group on Disability Statistics. During this session, World Bank colleagues and external partners discussed recent efforts to collect better data on persons with disabilities. We also launched a new self-paced World Bank e-course “Collecting Data on Disability Inclusion” that provides technical knowledge to World Bank staff and development partners on disability disaggregated data to support inclusive development. The course includes an introduction to the Washington Group (WG) question sets.
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